Tonight we celebrated Jacob's first birthday. What a miracle this birthday is. Jacob is fighter and what he has to go through with doctor appointments, treatments and the like makes this birthday so special. I think about how lucky we are that he was born when there is a treatment for Pompes. If he had been born a few years earlier we probably would not be celebrating his birthday today.
He is a little behind developmentally but it does not matter at all to us. We love this little boy and the blessings that he has brought to our lives. The fact that he is alive, not on a ventilator or a feeding tube shows that miracles still happen today. We all had such a great time celebrating this milestone in his life.
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